All posts by Jens

Modifying Our Flat

missingcouch

In the picture above you can see the part of our flat where our couch used to be until yesterday. I had to disassemble it and bring some parts down to the cellar in order to gain space for a hospital bed. This means that Nadine will come home again tomorrow after the first round of her new chemotherapy with depocyte – that’s the name of the substance I wasn’t able to recall in my last post.

But this also means that Nadine’s mobility is really bad: walking or standing is completely impossible and even sitting stable is very difficult and demanding. Her condition might improve but we weren’t given much hope. Nevertheless we try our best and hope that it becomes possible for her to spend at least some parts of the day in a wheelchair. With the hospital bed being her main base soon, I wanted to have it in the living room so that we can share the days together. And she will be located right in front of our big panorama window which has a view she always loved.

A New Substance

mtxresting

Meanwhile Nadine has received four injections with MTX. After each, she has to rest flat on her back for about two hours – that’s what you can see in the picture above. The injections have helped her and she is feeling way better now.

Nevertheless, there will be another change in therapy. From tomorrow on, they will giveher a different substance – I forgot the name – which is known to have the same effect but lasts longer. This will allow her to come home again with two nights in hospital every fortnight. If no complications occur, she’s going to be released on Thursday.

Haunted By Ghosts

d6atnight

Here’s a view on the D-building of the Katharinenhospital at night. Station D6 is on the top floor, Nadine’s room number 20 is the one with the shutters down highlighted by the red arrow. You can stop by whenever you like as long as you don’t exhaust her. It might also happen that she’s asleep and doesn’t realise there are visitors.

The picture was taken from the station of bus number 42, which is the one connecting the hospital with our home in a drive of about ten minutes. It’s a drive I hade to make on Saturday at 4:30 a.m. I tried to stay with Nadine for the night but she couldn’t find any sleep at all. In a state I would describe as semi-conscient she was talking to people who weren’t around for hours. The way these ghost-talks went suggested that she even received answers.

She gets medication against hallucinations now but still has problems with regular sleep and meals. Soups seem to work best. Today, she will reveive her third dose of MTX.