After two days of organization and rearranging things we had a quiet Sunday. Except the caretaker who is teaching me how to do things correctly and Nadines’s colleague Annette, who came by for a brief visit, we were alone the whole day. We’re getting used to the new situation and environment  and doing pretty well so far. Okay, it wasn’t quite amusing that Nadine was delivered with diarrhea on Thursday, but we survived that problem too…

In the picture above, which was taken early today, you can see Nadine in her new homebase having her morning tea and listening to some quiet music:

P.S.: She listened to the whole album which you can access here:
Nap Eyes – Thought Rock Fish Scale

In the picture above you can see the part of our flat where our couch used to be until yesterday. I had to disassemble it and bring some parts down to the cellar in order to gain space for a hospital bed. This means that Nadine will come home again tomorrow after the first round of her new chemotherapy with depocyte – that’s the name of the substance I wasn’t able to recall in my last post.

But this also means that Nadine’s mobility is really bad: walking or standing is completely impossible and even sitting stable is very difficult and demanding. Her condition might improve but we weren’t given much hope. Nevertheless we try our best and hope that it becomes possible for her to spend at least some parts of the day in a wheelchair. With the hospital bed being her main base soon, I wanted to have it in the living room so that we can share the days together. And she will be located right in front of our big panorama window which has a view she always loved.

Meanwhile Nadine has received four injections with MTX. After each, she has to rest flat on her back for about two hours – that’s what you can see in the picture above. The injections have helped her and she is feeling way better now.

Nevertheless, there will be another change in therapy. From tomorrow on, they will giveher a different substance – I forgot the name – which is known to have the same effect but lasts longer. This will allow her to come home again with two nights in hospital every fortnight. If no complications occur, she’s going to be released on Thursday.